Jan 29, 2009
Ecclesiastes 3:1-8
A time to be born, and a time to die; a time to plant, and a time to pluck up that which is planted;
A time to kill, and a time to heal; a time to break down, and a time to build up;
A time to weep, and a time to laugh; a time to mourn, and a time to dance;
A time to cast away stones, and a time to gather stones together; a time to embrace, and a time to refrain from embracing;
A time to get, and a time to lose; a time to keep, and a time to cast away;
A time to rend, and a time to sew; a time to keep silence, and a time to speak;
A time to love, and a time to hate; a time of war, and a time of peace.
Jan 21, 2009
You Probably Think I'm A Dem, But I'm Not
Jan 15, 2009
Ugh...
Jan 14, 2009
Surgery Date Set!
Jan 13, 2009
ct scan and iron treatment number 2
Jan 11, 2009
last one
So had to wait one more week for the ultrasound and appt with the girl dr… I made it to Thursday fairly calm… all day Thursday it was all I could do to make it through to Friday and the appt…
This week was the first part of our year end close for 2008… this made time go by quickly… but at this point I have been waiting for some answers since Christmas Eve and I am done being patient… finally Friday came and it was time for the appt… again dusty went with me… (he is great by the way with not letting me cry or get upset or have a pity party during all of this… he keeps me laughing all the time… for this I am thankful!) girl dr is great! Made me feel very comfortable from the beginning… (this was my first time to see her) however, the first thing she told me was that she did not have an ultrasound scheduled for Friday… this pushed me over the edge and I lost it right there in the exam room and it was not pretty… I explained to her that I had been telling myself for 3 weeks that if I was patient then I would get some answers today! She was wonderful and set up an ultrasound for 1:15… this was a relief… she felt the same mass and also assured me it was not on my uterus… she believed it to be an ovarian cyst… she stated that it may be one of those that has teeth and hair and bones, etc… (creepy… didn’t even know that was possible!)… she said that there was a slight chance of cancer and she wanted to get a cat scan as well just to rule out anything… she did say to prepare myself for surgery by the end of January!! She also said that it would have to be abdominal surgery, we would not be able to do it laparoscopically… this would mean longer for recovery…
So, dusty and I needed to kill an hour… and I needed to drink 32 oz of water during that time and not empty my bladder… I guess it is easier to see everything if you have a full bladder… dusty’s comment was that I was finally going to learn to hold it (I am not good at this…) so we went to quizno’s and kohls of course to kill time… by the time we got to the ultrasound it was excruciating… we were in the waiting room and someone came out to get water from the ozarka water bottle and then someone else came out to fill the coffee pot… at this point I thought I was on candid camera I had to go so bad!! They finally called me back and it was interesting to do an ultrasound… this was my first one… the gel was nice and warm which was good… if it had been cold, I might have lost all control of the bladder right there on the table… so she puts on the machine and I guess finds the cyst right away! She was taking snapshots all over the place… did I mention that you have a very full bladder and they are pushing hard right on it!!! It is not comfortable… also, everyone keeps asking if I am in pain and I am not unless they push on it… which was happening a lot that day! You don’t get to see the ultrasound and the tech doesn’t really tell you anything, but I was glad just to know that it was getting done and I would have some more answers on Monday…
I dropped dusty off and headed back to work… on the way back to work the dr assistant called to say they had scheduled the cat scan on Monday and we needed to pick up the “contrast” to drink before the scan… and she had some great news! The cyst was not a cyst but a fibrous mass on uterus… the likelihood of cancer is very unlikely in a mass, but they still wanted to do the cat scan to make sure and to get the actual location of the mass… outside of uterus, in wall of uterus, etc… she let me know that surgery was still a necessity to remove the mass and that it would be a myectomy… this will allow us to still start a family after the mass is removed and the uterus heals up… said going forward I will have to have c-sections when we do have kids… this is okay with me… just glad kids are still in the picture… this was great news for me…
Went back to work (did I mention it is our end of year accounting time… needless to say all of this has been a little stressful, but work has been great!)… our accounting computer programs were down so I looked up some information on uterine fibroids… number one symptom… heavy monthly visits… leading to anemia! This mass may be the cause of it all!!! So here’s hoping that when it comes out everything returns to normal and won’t have to do iron iv treatments much longer… I also have done a lot of internet research on the surgery as well… probably not a good idea… there are a lot of horror stories out there…
So now here we are… cat scan is Monday at 11:15, next iron treatment Tuesday at 1:00 and meet with girl dr on Wednesday at 10:30 to plan surgery and get more details…
Specific prayer requests… if you could pray for us, that would be wonderful!
Sleep/rest – I keep waking up and all I can think about is the unknown – waiting for Wednesday will seem like forever
Faith – to know that God is in control and that there is a reason for everything ( I cannot express how thankful I am to God that we have not gotten pregnant before now, or even tried to get pregnant and then had to try to deal with all of this at the same time
Recovery – looks like with this type of surgery I will be out of work for a minimum of 4 weeks, luckily we have FMLA paid leave and this shouldn’t be any cause for concern… I am fairly independent though and it will be hard for me to let people help, and rest and not clean and no driving for 4 weeks! This will be hard
Patience – for the same reasons as above I need to have patience with my body to let it heal
Dusty and I – pray for us to grow closer and be patient with one another during the recovery time period… pray for him to be able to rest as well… school starts back up this week for him and things will be getting crazy again
Work – pray for me to not stress about missing so much work… God’s timing in amazing… up until now, I am the only person in the company that knows my job and what I do, we just added someone to our group this Thursday to start training on what I do… for a variety of reasons, but this is Gods timing I am sure…
We will keep you posted on what we hear… sorry for the long blogs and for not sharing what has been going on, we just really didn’t have much information to share… here’s hoping that going forward we will continue to have more details of what is going to happen…
More
This Wont Make Sense Unless You Read The Previous Post
The News Continues…
So we head to the hematologist on Christmas Eve… first of all it is downtown at St. Anthony’s in the Cancer Care Center… (but that isn’t supposed to alarm you… yeah right…) I had to have a police officer escort me through the hospital because I went very unprepared (remember, I did not make the appt.) I didn’t even know the doctors name, or anything… everyone looked at me like I was crazy… well, we found the dr and before I could see him they called me into the lab to take some more blood… guess he wanted his own… I was thinking, here we go again… this nurse was so nice… (I always warn them ahead of time… sometimes this backfires, because they think they are the one nurse that is going to get me on the first stick… other times… they look and say “wow… now I see why you say that… J) I let her know that the last time they took blood they were able to get it out from my hand… so she tried here first… and about 4 tries later gave up… she moved to the middle of my arm (have never see that before) and hit a vein right away… she said to tell nurses in the future to use a pediatric needle… I need a little baby needle for my baby veins… the I got to see the nurse who preps you for the hematologist… she took all the vitals and then hands me a gown and says strip down and the opening goes to the back… (What!!! This is a blood dr… why do I need to put on a gown… I was not prepared for this!!!) the dr comes in and basically agrees with my original dr that I am extremely anemic and isn’t concerned, but says we just need to figure it out… he believed it was being caused by my very heavy monthly visit… (the blessing of being a woman…) more numbers… I had a 2% make up of red blood cells to white blood cells… and some other number was at a 1… he said most “normal” men and women were at a 300… not sure what that number was, but obviously.. mine was pretty low… my other CMV number had also gone down… so much for eating all the iron enriched foods… after he asked all of his questions and we talked about options for helping with the anemia (iron IV treatments… in next blog… and talking to the girl dr about new birth control options…) he did a full physical exam… didn’t know this was part of the process… but thankful that it was… he found a “large mass” in my lower abdomen… he said I might be really constipated… or maybe I hadn’t peed in a couple of days… I assured him this was not the case, and he said he just knew that it was not my uterus and he didn’t know what it was… he said he would order an ultrasound, but knew that my girl dr would want to have her own ultrasound and didn’t want me to have to pay for two… so… I would just wait and have the one with the girl dr… i also told him about us talking about having a family and he reiterated that it was not an option at this point… he said we would have to figure out all of this stuff first and then we could talk about family options… this was pretty devastating to hear… I came home to tell dusty and I still don’t think he understands why I was more upset about being told we couldn’t start trying to start a family than this mysterious mass in my lower abdomen… that is just something that women don’t want to hear… at anytime I think, but especially when it seemed like the timing was coming so close… I called the girl dr right away… and the first time she could get me in was Jan 12!!! I have a mass… and the earliest was Jan 12???? I called the hematologist back to make sure this wasn’t too long to wait (medically… emotionally I already knew it was too long to wait…) and he said that it would be fine, just to make sure that they did the ultrasound to see what the mass was… and to come in for the iron treatments… so again we have 3 weeks to wait… luckily Christmas was during this time and that was distracting… also my best friend had a new year’s baby and I got to spend a lot of time being distracted with this beautiful little one…
Next step IV iron treatments start…
Dionne likes posting all at once
so... normally i let Dusty do all the blogging for our family... and i have been asking him to keep this out of the blog... but Friday we got some more information on what has been going on and i am planning to blog through the experience and let everyone know what is going on... i will say i do not like having to capitalize and so... everything will be in lowercase letters...
all i can say is God's timing is perfect... dusty and i have been talking a lot about when is the right time to start our family... although most of you know, just in case you don't, there is a 10 year age difference between dusty and myself... this means my biological clock is now banging in my head and finishing school is still looming in dusty's future... we had been talking a lot about when is the time right and now meeting on the same page... one day i went into the bathroom at pizza hut and just prayed... i handed everything over to God involving the timing and future of our new family... i told God this is just like when i was single for all those years and hated every minute of it and that i didn't want this to be the same way... i told him i was willing to wait the 10 years for the baby as well... as long as when i had him/her that everything went smoothly and there were no complications that that everyone would be healthy and well... (for those of you that also do not know, i started praying for dusty (my husband) at 18... i had seen all my girlfriends have broken hearts and hurt by their boyfriends and i just prayed that God would not have me go through that... i had never dated anyone in high school, and that freshman year in college i prayed to God that i would not date anyone until my husband... little did i know that he was 9 at the time and that it would take us another 10 years to find each other... it was hard to be patient that long and although i kept telling God... okay now, i didn't think it was going to take this long when i prayed that... it was well worth the wait, God brought the perfect man for me into my life and 10 years is nothing compared to getting to spend eternity with him...)so... i gave the timing to God and he took it in His hands to show me why nothing has happened yet... (and i am so thankful)...
it all began back in late November at the end of the living well bonus program at Chesapeake where i work... (this is a program where you can get an extra bonus for working out, taking classes, etc... ) one of the requirements of the bonus is to have some blood drawn and a work-up of several results (blood pressure, cholesterol, etc...) if you do not pass all of the tests then you have to have your doctor sign off on the tests you didn't pass and give you information on how to pass them the next year... well... i had high blood pressure when i did my work-up... i do not typically have high blood pressure, but these tests always stress me out because i know they are going to take blood and i am horrible at giving blood, nothing ever comes out... i went to the doctor to have him sign off on the high blood pressure, knowing that it would not be a large concern... he agreed... however, in the 20 pages of information that you get after the tests come back he found another number that he did not like...
this was my CMV number... it was at an 8... i guess the "normal" low for people would be 34... he said "did you know you are extremely anemic?" i said "nope, never heard that before"... he asked all kinds of questions and wanted to run some more blood tests... (again with the giving of blood that i am horrible at)... 7 tries later (by 3 nurses) we finally hit a vein and he was able to get the blood he needed... he called the next week to let me know that i had iron-deficiency anemia... said "you have the type of blood of someone who has been in a horrific car accident and lost massive amounts of blood and is trying to rebuild their blood supply"... this is why i have such a hard time giving blood... there is no blood pumping through the veins to make them big, which means they are hard to get into... he said for me to start taking an iron supplement and eat a big steak and we would check back in 3 months to see where we were at... i told him that dusty and i were talking about starting a family (me really, but wanted to know the information none the less :)) and he said that he would discuss things with my "girl dr" and a hematologist to see what my options were... but that there is no way i could carry a baby right now, because i am not making enough blood for myself let alone a little one... but he was encouraging that i had options... blood transfusions... etc... not really things you want to deal with when you are pregnant...
i started taking the iron supplement and about 5 days later woke up with a rash all across my stomach... i called the dr and he said to stop taking the supplement and he would just have me meet directly with the hematologist to see what the next steps needed to be... they scheduled an appointment for Christmas Eve... so... three weeks to wait... not a huge deal, because i had no idea that i was anemic in the first place, so it really didn't change anything... everyone just kept asking me if i was tired... (i kept thinking i am fat and lazy... isn't everyone tired... little did i know i could have something to blame it on this whole time... ) since i couldn't take the iron supplement, i increased the iron in my diet, hoping it would help... i quit eating much red meat about 2 years ago... thinking it would be healthier to use ground turkey, chicken, etc... so i started using real hamburger meat again and found that the gas station has a lot of food high in iron... pumpkin seeds (not be be eaten with the shell still on them... ), sunflower seeds, beef jerky, cashews, etc... work was crazy during this time with year end stuff and one of the weeks we had to wait was when dusty and i were in new york, so that was a good distraction... so the three weeks came and went and on Christmas Eve i went to meet the hematologist...
this will continue in the next post... no pictures yet... but now that we are going to blog about it, i will take some...